The worst part about FPIES, is not knowing that your child has FPIES

“So long as you have food in your mouth, you have solved all questions for the time being.” – Franz Kafka Seems so simple doesn’t it? But, when you finish reading this post, you will find the quote to be one that helps people in Laura and my situation sleep at night. Our son, the boy responsible for carrying on the family name, was born with a special condition. His condition has led to my intestinal condition. Any time I fear that he is in danger of an episode, my stomach, like his stomach, turns to knots and the butterflies scream in anger and hammer my heart with everything they have. Miles has FPIES. FPIES is Food Protein-Induced Enterocolitis Syndrome. It’s a nasty little syndrome and the problem is that people just don’t know about it. Miles is now three and a half and we have a pretty good grasp on his FPIES, but this wasn’t always the case. When he first started having episodes we were in and out of the emergency room and at a loss as we just did not know what was going on with our then infant. When Miles was born, he didn’t take to breast-feeding and we started him on formula. Lucky for Laura and me, we put him on Gerber Good Start. Everything went well for the next six months. I got to feed him, something I do miss about having babies, he learned to roll over and sit up. He was gaining a ton of weight. We had no idea that our little boy had a secret. When he was six...